Tuesday, March 27, 2012

Sugar Free :(

I have lots to write about today. We saw Dr. Alberty, Addie's GI, this afternoon. I described what happened to her while she was in the hospital and he believes she had aspiration pneumonia because she just had a tiny cold and her breathing got bad after she started vomiting. It has been 10 days since Addison last vomited. He believes the liquid Flagyl solved her problem. She had bacteria overgrowth. With that being said, she is high risk to keep getting it over and over again. Since she will always have poor motility it is easy for the food sitting there to cause bacteria overgrowth. Bacteria love sugar and it helps the bacteria grow. So you guessed it, Addison is now on a sugar free diet. Yes, this means even a sugar free Easter basket. My heart is breaking once again that she cannot have a normal life. I know she doesn't really know the difference but I do. When I ask her what the Easter bunny is bringing her she says smarties, tootsie rolls, suckers, a dog, and a bunny. I just don't want her to be disappointed when she sees her basket and those things are not in it, unless I can find some sugar free smarties which I highly doubt. Sugar free also means I have to make her Crystal Light drinks instead of the usual HiC, Capri Sun, apple juice, etc. Dr. Alberty even suggested I freeze the Crystal Light to make her popscicles. We did not have to schedule a follow up appointment. He simply stated he is sure he will see us again, he is just not sure when it will be. He is fine with her vomiting once here and there but if she starts back to 2-3 times a week I have to call him. He will most likely call in Flagyl again before trying anything else. Addison started sneezing Sunday evening and today her nose started running and now she is coughing and gagging. Knowing her I am sure she will not make it through the rest of the day without vomiting. Everytime she gets the smallest cold she vomits from the drainage or coughing gagging her.
The yard sale we had to benefit Addison and Evan was a huge success. We raised $2736 for us to split. I am very thankful to everyone that donated items to sell, donated their time to help us organize, set up, during the yard sale, and clean up. People continue to surprise me with their kindness. We had baked goods that were donated by Sandy Bosarge. Everything tasted amazing. She made the best cookies I have ever eaten. Jeremy Skupien donated sausage for us to grill and sell. He even arranged for Walmart to donate the buns. Thank you to Paul Morano, Karen Patrick, Angela Pendas, Courtney Walker, Michelle and Troy Robinson, Amanda Morgan, Bethany Butler, Rachael Hines, Lauren Braden, Sheri Gautreau, Jamie Farnham, Mary Heidingsfelder, Lauren Sonnier, Michael Johns, Speedy and Vickie Rettig, Jennifer and Jason Lapin and Charlotte Carnley. I am so sorry if I left anyone out. And thank you to my sister in law Cassie for watching Addison for us.  I made enough from the yard sale to pay Addison's surgeon in full and pay an extra $300 to the hospital from her Jaunary visit.
Now I am focusing on the upcoming dance on April 28th. We have a DJ that will be playing music and letting people sing karaoke. We will have a raffle and silent action. I am really excited about how much fun it will be. I am still selling t shirts as well.
Here is the link from the news interview we did to help out the Our Lady of the Lake Children's Hospital fishing tournament. http://www.abc26.com/videogallery/68983213/Community/olol-children's-hospital-bass-classic-tournament#pl-62806595 Tre was supossed to fish in the tournament but we needed his help at the yard sale. He has been fishing the tournament for several years since it is for such a great cause. Especially now we have had to use their services several times and he has seen how raising money for the hospital helps the children so much.

2 comments:

  1. So proud for raising the money Jamie! I'll keep praying for little Addison. She's so super precious! Love, Alisha <3

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  2. Well you just tell Tre that now he has to get Addison a BUNNY!!! LOL

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