Addison saw her pediatician this morning about her coughing and vomiting. She has a left ear infection and is wheezing on her right lung. We have already been seeing her ENT about her clogged tubes in her ears so the pediatrician thinks it is best to go ahead and have the tubes removed and replaced and not putting Addison through more than one procedure. Dr. Scallon, (ENT, I feel like I should make a cheat sheet with all her doctors names and what their specialties are for the blog readers) had previously said she could try to suction them out and then remove them and see how Addie did without them, but I agreed it is better to just get the surgery done and put her to sleep only once. Dr. Guidroz (pediatrician) said she does not want to diagnosis Addison with Asthma because they usually don't diagosis children when they are so young because most grow out of it. Since Addison was just in the hospital less than 2 months ago she suggested we start Addison on a preventive inhaled steroid to be used daily. She also prescribed an antibiotic, an oral steroid to just be used for 3 days, and an inhaler. For the inhaler, she prescribed a mask we will have to use to be sure Addison is inhaling all the medicine. I had to go to 2 pharmacies before I found one that had the size she needs. I just got a call our insurance does not cover the mask and it is $60 when using the Rite Aid discount card, which I hope is just the regular card and not something special that we do not have. The pharmacist asked do you still want me to fill it, well of course! What was I going to say no? I told Dr.Guidroz we were denied disability benefits and she said we have to start speaking up. I need to ask all of Addison's doctors for samples. She said it breaks her heart people with children with chronic diseases cannot get help. I seriously cannot thank all of you enough for your support. I am so blessed to have each of you in our lives. I did not hesitate to have Addison's prescription filled for $60. I honestly would have paid for it no matter what the cost was. If she needs it, I will do whatever it takes so she gets it. I am in tears now thinking the pharmacist asked me that because their are families that can't afford to get it filled. I am so grateful to my employers for allowing me to work from home to give Addison the attention she deserves. And of course to all of you. Because of you all donating I didn't have to hesitate, I can get the mask. We have to take each day as it comes to us. We never know how many appointments Addison will have in a week or prescriptions. I mean we have our routine visits planned but not the surprises we are given quite often.
As for what has happened over the last few months with Michelle, I cannot focus on her. Addison is my main priority and I do not have time to play games with dishonest people. She knows what she has done and I have no reason to make these things up. I have received an overwhelming amount of messages and calls about other things that were going on. I am so sorry to all of you that were donating to her and that she did this to you. Her name will never be mentioned in this blog again. I just wanted to spread awareness. Please if you need to get in touch with me my email address is southerngal05@cableone.net and if you see Addison's pictures on flyers or anything, remove them for me. We do not have any other fundraisers going on right now. I do have t shirts for sale but I am not advertising anywhere.
Right now I have to concentrate on getting Addison ready for the ear tubes surgery. I know this is a simple procedure but Addison is very smart. She has been through so much and she remembers everything. I have posted before about the nightmares and the trauma those IVs cause her. I am already dreading being in the preop room having to put a hospital gown on her and handing her over to the nurse. I know she will be terrified. Her appointment with the ENT is next week and I will post her surgery date when I know it.
I will post again later this week after she has therapy tomorrow and we have the allergist appointment Thursday.
Monday, April 30, 2012
Sunday, April 29, 2012
Too hurt to think of an appropriate title
This may possibly be the longest post I have written. We have had a very interesting weekend. Addison is still coughing and vomiting. She has vomited 6 times in the last 3 days. We had a great time at the March of Dimes walk Saturday morning. Addison's stroller won a plaque for the best decorated stroller or wagon. I will post pictures soon. The dance benefit was Saturday night. It was great to see everyone. We fried fish, sold t shirts, raffle tickets and sang karaoke. Addison did vomit during the dance but she enjoyed dancing and picking out songs to play on the jukebox. Thank you so much to everyone that helped, donated and came.
I want to truly apologize to everyone that was in contact with Michelle McCrory Robinson. Me and Michelle were friends in 8th and 9th grade but she dropped out of school and we lost touch. Courtney Walker offered to help me with the yard sale event and created an event page on facebook. Michelle contacted her and told her we were best friends and Michelle offered to help. When the write ups were written for the press, she told Lauren Braden the same thing so she could get her name listed as a contact. We had people offer to store donations at their houses but Michelle insisted on renting storage units. She was accepting donations and advertising to contact her. I was bringing loads of donations to the units on my weekly visits to Ocean Springs. I did get a strange feeling about things that were happening. She told me she was making jars to put out at stores and I immediately told her no. It did not sound like a good idea because employees can take the money and I did not trust her to pick them up either. She would call and ask me how much I wanted for items and say she would pay me for them at the yard sale that she had everything wrote down, that she is extremely organized. She told me she had spent over $700 on gas driving back and forth to the storage unit. She asked me for a free Addie t shirt because she was wearing hers everyday and needed an extra one so she didn't have to wash it every night. She delivered a t shirt for me and I told her to use the $20 to get flyers made. The day before the yard sale we were sorting and still receiving donations. She was taking items as soon as they were being dropped off. She didn't want to even go pick up her son from school and was trying to send Mary to go pick him up. The day of the sale her husband pulls out a grill and tells my husband, look at my new grill I just got. Tre responds, I know you just got it because I brought it over. Troy responded oh yeah we are going to pay you for it. Michelle pulls out chairs to sit in that were me and Tre's old lawn chairs. I could go on and on listing items but I do not want to upset the people that donated them. We were never paid for the items she took. She did write me a check for the china cabinet and the grill, because there was no way for her to get out of those items. She insisted on sitting at the money table the entire sale. We had caught on to her by then and had already spoken days before the sale for her not to be left alone by the money. She even made a comment to me about how she felt like she was being watched. The day of the sale I was told there was a jug with Addison's picture on it and I told Michelle again I do not want jars out. She said okay and I never heard anything else about them. She never even mentioned getting me the money that had already been collected. Tre' had to deliver the china cabinet she bought and said her garage was slap full of stuff we had brought over and no telling what else she had inside.
When the dance benefit was planned she contacted the host and asked to be added to the event as a co host. My mother had to call and get Michelle's name off the event page. She created a flyer to drop off at businesses with an email address she made for people to contact her for donations. If anyone knows the email address, please let me know. She ordered more t shirts from me and said she would get the money from people when she delivered the shirts and then pay me because she was short from spending so much money on the yard sale. She told me I shorted her 2 shirts. I know I didn't, I counted the shirts 3 times because I knew something wasn't right. She would say she was dropping off all the money and raffle tickets on a certain day and then not contact me. She was deleting post me and my mom made on her facebook page asking about collecting everything. She was even picking up yard sale donations weeks after the sale was over saying she was going to give it to another friend that was having a yard sale benefit too. I contacted her to pick up the raffle tickets and t shirt money and she told me to call her when I turned into her neighborhood and she would put them outside. As I was picking them up, she tapped on the window and waved to me. I was thinking that is so weird. She doesn't want me to go inside her house, must be because she stole so much from the yard sale. She then texted me to hold her checks until she told me I could cash them. She collected cash for the t shirts and raffle tickets from people and wrote me checks I could not cash. As we are driving home from her house I get a phone call there is a jar with Addison's picture on it at a convient store. We immediately turned around to check. The store owner was in complete shock. He said him and his wife thought it was weird and even questioned if the story was real. He said he was taking customers change and putting it in the jar constantly. Michelle was checking the jar every 2 days or so. He said he would be a witness and was sure he has her on video collecting the money. Michelle even told him to protect the jar because her husband had recently left her. The store owner said she made tons of money. We left the store and filed a report with the police department. It takes a few days for the report to get posted and we will be able to press charges on Wednesday. Tre' called Michelle when we left the police department and Michelle hung up on him. She called me and said she was going to surprise me with the donations. She had a big Bama jug she was filling up for us. I asked why she took people's cash and gave me bad checks, she continued to swear she was not stealing. Here is the thing, if she wasn't, why didn't she show up at my mom's with the Bama jug? I counted the raffle tickets and she shorted me $50 for what she turned in. There is no telling who bought tickets that she didn't give to me. She told me she had given 4 books out and had not collected them from the people yet. She did not return any unsold tickets to me either, so I am sure she sold them and kept the money. I told her I was calling every person on the tickets and I felt bad for her mom because I am sure she would be embarrassed for her co workers to know Michelle stole their money. I asked about where was the money for the shirts she didn't pay for and she told me she would pay me next week. I suggested people pay me through the paypal link and she said no she was buying them as a gift. She must have already collected their money and didn't want me to know. She texted me Saturday morning and said she borrowed money from her mom so I could cash the checks, which I did. But she still has not mentioned giving me the Bama jug. Since I have alerted people I have received several messages and heard all kinds of stories of what she was up to. Apparently she either kept for herself or she pawned the yard sale items she stole. I cannot see any other reason she would leave me the tickets on her porch and not open her door. The only reason I was in contact with her for so long was I wanted the money she owed us. She plays the role she worked so hard, which she did but not for us, she was working for herself. She fooled everyone into thinking we are best friends. We are so hurt and shocked that she has done such a horrible thing to our family. Can you imagine walking into a store and seeing a picture of your sick child on a donation jar? Please help us spread the word and if anyone donated for the raffle or silent acution, we need to know. We may have not received the donation. Again I apologize to each and every one of you that were in contact with her. Please contact us if you see anything with Addison's name or picture on it or if you have any other information we may need to know. Or if you see anything with Evan's name on it. Evan is the little boy the yard sale was for too. When I think of everything we have been through and we were embarassed to ask for help to begin with, I am just devistated.
As always please continue to pray for Addison's health. I am bringing her to the pediatrician in the morning about all this coughing and vomiting. She will have therapy on Tuesday and see the allergist on Thursday. Tomorrow we will also deliver Addie t shirts to a group of Southeastern nursing students.
I want to truly apologize to everyone that was in contact with Michelle McCrory Robinson. Me and Michelle were friends in 8th and 9th grade but she dropped out of school and we lost touch. Courtney Walker offered to help me with the yard sale event and created an event page on facebook. Michelle contacted her and told her we were best friends and Michelle offered to help. When the write ups were written for the press, she told Lauren Braden the same thing so she could get her name listed as a contact. We had people offer to store donations at their houses but Michelle insisted on renting storage units. She was accepting donations and advertising to contact her. I was bringing loads of donations to the units on my weekly visits to Ocean Springs. I did get a strange feeling about things that were happening. She told me she was making jars to put out at stores and I immediately told her no. It did not sound like a good idea because employees can take the money and I did not trust her to pick them up either. She would call and ask me how much I wanted for items and say she would pay me for them at the yard sale that she had everything wrote down, that she is extremely organized. She told me she had spent over $700 on gas driving back and forth to the storage unit. She asked me for a free Addie t shirt because she was wearing hers everyday and needed an extra one so she didn't have to wash it every night. She delivered a t shirt for me and I told her to use the $20 to get flyers made. The day before the yard sale we were sorting and still receiving donations. She was taking items as soon as they were being dropped off. She didn't want to even go pick up her son from school and was trying to send Mary to go pick him up. The day of the sale her husband pulls out a grill and tells my husband, look at my new grill I just got. Tre responds, I know you just got it because I brought it over. Troy responded oh yeah we are going to pay you for it. Michelle pulls out chairs to sit in that were me and Tre's old lawn chairs. I could go on and on listing items but I do not want to upset the people that donated them. We were never paid for the items she took. She did write me a check for the china cabinet and the grill, because there was no way for her to get out of those items. She insisted on sitting at the money table the entire sale. We had caught on to her by then and had already spoken days before the sale for her not to be left alone by the money. She even made a comment to me about how she felt like she was being watched. The day of the sale I was told there was a jug with Addison's picture on it and I told Michelle again I do not want jars out. She said okay and I never heard anything else about them. She never even mentioned getting me the money that had already been collected. Tre' had to deliver the china cabinet she bought and said her garage was slap full of stuff we had brought over and no telling what else she had inside.
When the dance benefit was planned she contacted the host and asked to be added to the event as a co host. My mother had to call and get Michelle's name off the event page. She created a flyer to drop off at businesses with an email address she made for people to contact her for donations. If anyone knows the email address, please let me know. She ordered more t shirts from me and said she would get the money from people when she delivered the shirts and then pay me because she was short from spending so much money on the yard sale. She told me I shorted her 2 shirts. I know I didn't, I counted the shirts 3 times because I knew something wasn't right. She would say she was dropping off all the money and raffle tickets on a certain day and then not contact me. She was deleting post me and my mom made on her facebook page asking about collecting everything. She was even picking up yard sale donations weeks after the sale was over saying she was going to give it to another friend that was having a yard sale benefit too. I contacted her to pick up the raffle tickets and t shirt money and she told me to call her when I turned into her neighborhood and she would put them outside. As I was picking them up, she tapped on the window and waved to me. I was thinking that is so weird. She doesn't want me to go inside her house, must be because she stole so much from the yard sale. She then texted me to hold her checks until she told me I could cash them. She collected cash for the t shirts and raffle tickets from people and wrote me checks I could not cash. As we are driving home from her house I get a phone call there is a jar with Addison's picture on it at a convient store. We immediately turned around to check. The store owner was in complete shock. He said him and his wife thought it was weird and even questioned if the story was real. He said he was taking customers change and putting it in the jar constantly. Michelle was checking the jar every 2 days or so. He said he would be a witness and was sure he has her on video collecting the money. Michelle even told him to protect the jar because her husband had recently left her. The store owner said she made tons of money. We left the store and filed a report with the police department. It takes a few days for the report to get posted and we will be able to press charges on Wednesday. Tre' called Michelle when we left the police department and Michelle hung up on him. She called me and said she was going to surprise me with the donations. She had a big Bama jug she was filling up for us. I asked why she took people's cash and gave me bad checks, she continued to swear she was not stealing. Here is the thing, if she wasn't, why didn't she show up at my mom's with the Bama jug? I counted the raffle tickets and she shorted me $50 for what she turned in. There is no telling who bought tickets that she didn't give to me. She told me she had given 4 books out and had not collected them from the people yet. She did not return any unsold tickets to me either, so I am sure she sold them and kept the money. I told her I was calling every person on the tickets and I felt bad for her mom because I am sure she would be embarrassed for her co workers to know Michelle stole their money. I asked about where was the money for the shirts she didn't pay for and she told me she would pay me next week. I suggested people pay me through the paypal link and she said no she was buying them as a gift. She must have already collected their money and didn't want me to know. She texted me Saturday morning and said she borrowed money from her mom so I could cash the checks, which I did. But she still has not mentioned giving me the Bama jug. Since I have alerted people I have received several messages and heard all kinds of stories of what she was up to. Apparently she either kept for herself or she pawned the yard sale items she stole. I cannot see any other reason she would leave me the tickets on her porch and not open her door. The only reason I was in contact with her for so long was I wanted the money she owed us. She plays the role she worked so hard, which she did but not for us, she was working for herself. She fooled everyone into thinking we are best friends. We are so hurt and shocked that she has done such a horrible thing to our family. Can you imagine walking into a store and seeing a picture of your sick child on a donation jar? Please help us spread the word and if anyone donated for the raffle or silent acution, we need to know. We may have not received the donation. Again I apologize to each and every one of you that were in contact with her. Please contact us if you see anything with Addison's name or picture on it or if you have any other information we may need to know. Or if you see anything with Evan's name on it. Evan is the little boy the yard sale was for too. When I think of everything we have been through and we were embarassed to ask for help to begin with, I am just devistated.
As always please continue to pray for Addison's health. I am bringing her to the pediatrician in the morning about all this coughing and vomiting. She will have therapy on Tuesday and see the allergist on Thursday. Tomorrow we will also deliver Addie t shirts to a group of Southeastern nursing students.
Wednesday, April 25, 2012
Busy little bees
What a week it has been! Addison vomited 10 times in 12 days. She has been puke free since last Friday. She had her evaluation with a speech therapist who specializes in feeding yesterday afternoon. She said Addison has a few things going on. The first thing is she swallows her food almost completely whole. I had noticed last week in her vomit it was quite chunky. The therapist, Margaret, said she is only chewing like 2 times and then swallowing. That is why she spits food out. She spits the pieces that are to big for her to swallow whole. Margaret did a series of test on Addie. Addison also has sensory problems. For normal people when you taste something sour you will make a face. She was giving Addison pure lime juice and Addison never made the sour face. Margaret said she puts 2-3 pieces of food in her mouth at a time because she cannot tell she has food in her mouth unless it is full. She suggested we add lemon or lime juice to all of her food, even mashed potatoes. We have some homework to do. We have to set a timer for 5 minutes and reward Addison when she sits at the table the whole time. Each week we will add 1 minute to the timer until we are up to 12 minutes. I also have to go buy some tubing for Addison to practice chewing twice a day. Addison will have therapy every Tuesday for an hour. Margaret said some of the exercises she will do will most likely cause Addison to gag and vomit but we have to teach her how to chew correctly. Addison averages 1 doctor appointment a week so we will be even busier now. I guess we were spoiled with her other therapy sessions because the therapist would come to the house. Next week Addie will have therapy on Tuesday and see the allergist on Thursday. The following week she will have therapy and the ENT on Thursday. We have to follow up with her GI, Dr. Alberty after she sees the allergist so I am going to try to make it for the following week so we are not living at doctor's offices and don't go more than twice a week.We are getting things ready for this weekend. Saturday morning we have our walk for the March of Dimes. Saturday at 6:30 the benefit dance starts. I don't think people realize how much work goes into fundraising. The hardest part about the shirts is collecting money. I not only had to pay for the shirts, the raffle tickets and the dance tickets all up front but it is sad when people ignore your messages. I have had 3 people offer items for the raffle and we advertised for those items with their logos on the flyers that have not given me the items. Now we are forced to raffle the items we had for the silent auction. I don't understand how people can be so rude. The whole point was to help us with the medical expenses and now it is actually costing us money. More than anything my feelings are hurt and it has added more stress and disappointment. I will continue to pray for them and others that have let us down in our time of need. I pray they never feel the hurt and disappointment I am feeling and they never have a child with a medical disability. Okay, I said my two cents and I am moving on. We are still going to have a blast walking with the March of Dimes and shaking our booties for Addie. We will be frying fish starting at 6:30 and your meal is included with your ticket to the dance. Where can you go to eat and dance for $10? I will be very busy these next few days so I probably won't post again until Sunday night or Monday. Lets pray for a great weekend and a vomit free one too! I can't wait to see everyone and for all of you that have not met Addison, I can't wait to show off our precious miracle and strong fighter.
Thursday, April 19, 2012
After Addison woke up from her nap yesterday she was complaining her belly hurt. She was very fussy and I could not please her. Even to change her diaper was a struggle. She wanted a diaper, I got it and she screamed for a pull up, I got the pull up and she screamed for big girl panties and on and on and on. She even at one point was crying for me to bring her to the sink. She started vomiting last night around 8:30 and continued to vomit 2 more times through out the night until 4 am. She was saying things like "I am sorry I puked," "No more puke please," "Is my food in a tube?" and she pointed to her nose, "I need to go to the hospital and get an IV." It was a very sleepless night and I have decided to trash our comforter instead of taking it to the laundry mat again. I plan to just go buy a regular blanket, something that will fit in my washing machine as soon as I can.
I called and spoke with her pediatrician's nurse today. Dr. Guidroz had mentioned Addison needing to see a speech therapist about her feeding issues back in February. When Addison vomited, it was very chunky like she was not chewing. She still chews and spits out her food but not as much as she used to. She has been gaining 1 pound a month but I really think it is from drinking milk. Dr. Guidroz sent over the referral and Addison has an appointment next Tuesday for an evaluation with a therapist that specializes with feeding and oral motor skills. Once she starts therapy her sessions will be at the same time and day each week in their office in Baton Rouge. It has only been 3 months since she stopped getting her other therapy sessions through Early Steps.
Since she has now vomited 7 times in 10 days me and Tre have decided it is time to get in touch with the Cinncinnati Children's Hospital and get her an appointment. Even if they tell us the same as her GI here I will have peace of mind we did everything we could for her. After her stricture being over looked for so long I cannot rely on her doctors even though she has new ones.
I know how awful it is to vomit and to think that is all she knows, it just breaks my heart. She is still waking up 2-3 times a night so the sleep depirvation doesn't help me out either. She has never slept in her crib and sleeps in her nap nanny between me and Tre'. Please continue to pray for our family and Addison's doctors guidance to lead us to some answers.
I called and spoke with her pediatrician's nurse today. Dr. Guidroz had mentioned Addison needing to see a speech therapist about her feeding issues back in February. When Addison vomited, it was very chunky like she was not chewing. She still chews and spits out her food but not as much as she used to. She has been gaining 1 pound a month but I really think it is from drinking milk. Dr. Guidroz sent over the referral and Addison has an appointment next Tuesday for an evaluation with a therapist that specializes with feeding and oral motor skills. Once she starts therapy her sessions will be at the same time and day each week in their office in Baton Rouge. It has only been 3 months since she stopped getting her other therapy sessions through Early Steps.
Since she has now vomited 7 times in 10 days me and Tre have decided it is time to get in touch with the Cinncinnati Children's Hospital and get her an appointment. Even if they tell us the same as her GI here I will have peace of mind we did everything we could for her. After her stricture being over looked for so long I cannot rely on her doctors even though she has new ones.
I know how awful it is to vomit and to think that is all she knows, it just breaks my heart. She is still waking up 2-3 times a night so the sleep depirvation doesn't help me out either. She has never slept in her crib and sleeps in her nap nanny between me and Tre'. Please continue to pray for our family and Addison's doctors guidance to lead us to some answers.
Sunday, April 15, 2012
Update
Addison continued to vomit on Wednesday. She ate lunch at daycare and vomited right afterwards. Tre' had to pick her up early and was told not to bring her back the next day. They said they know she is not sick but just incase. She vomited again later that night. So now I am faced with what to do about daycare. Since Addison can vomit at any given time why should I pay for daycare and her not go? It is extremely frustrating. They even said they know she is not sick! She had already seen her ENT and pediatrician so she was definetly not sick. Her appointment with the Allergist is on May 3rd. That was the absolute soonest they could squeeze her in and the receptionist made it very clear she was double booking the doctor's schedule. Sometimes I just cannot get over how the office staff treats patients. Its not like I want my child to be sick and vomiting all the time or like I am over exaggerating just to get her in sooner than the end of May. I could really be feeding her something making her vomit all the time. Thankfully Addison has not vomited since Wednesday night so it was 4 times in 3 days. I have applied for disability Medicaid but not heard anything. I also applied for Social Security Disability and have an appointment in the morning to finish the application. It took me 3 hours to list all of Addison's doctors and their information, as well as the hospital and surgery center stays, and places she has had xrays and swallow tests. I even had to list dates she had appointments. Hopefully it will all be worth it. Addison has been talking about the tube in her nose and the tube that was stuck in her belly this weekend. Please continue to pray for her and that we have an uneventful week.
Tuesday, April 10, 2012
Talk about some bad luck! Allergies
Besides the sugar free diet, Addison had a great week last week. We didn't have any doctor appointments. She did develop bad diaper rash with blisters which we are still battling. We think she may be allergic to soy so we have switched her to regular whole milk. We headed over to Ocean Springs Thursday night for me to go to work. On our way home on Friday afternoon we stopped by Front Beach and let her play in the sand for an hour. She loves the beach and feeding the seagulls. We stopped to eat lunch and it never occured to me restaurants do not have sugar free drinks on the menu. I still have a lot to learn about this diet. On Saturday we celebrated my nephew, Colin's 1st Birthday. The party was another obstacle for us. Addison of course wants candy when she sees other children eating it. My sister in law was nice enough to make her sugar free cupcakes. On Sunday Addison woke up around 3:30 and I just couldn't hold in the surprise of what the Easter Bunny left so at 4 she got to see all of her goodies. Since we did not find her a bunch of sugar free candy, the Easter Bunny left her a live bunny. We are not sure if the bunny is a male or female but I named it Ester. Addison however keeps calling it Chester, so Chester it is. He is all black and adorable. She is so excited to play with and care for Chester. I heard her asking Chester if he was feeling okay and if he needed an IV.
Monday afternoon she had an appointment with her ENT Dr. Scallon. Both of Addison's tubes in her ears are nonfunctioning beacuse they are clogged with ear wax. Dr. Scallon was able to remove some wax buildup from her right ear canal. She said her body produces so much wax the tubes are clogged and stuck and cannot fall out. She prescribed antibiotic ear drops for us to give Addison twice a day. And we also have to mix hydrogen peroxide and water and basically pour into both ears during her baths for 2 weeks to try to break up the wax. We will follow up in 1 month on May 8th. If the tubes still look bad Dr. Scallon will try to suction the wax out of the tubes and if that doesn't work she will surgically remove the clogged tubes and replace them with new ones. I want to be positive and think her tubes will unclog from the antibiotic drops but I am so used to everything going wrong it is hard not to expect the worst case senario.
Last night Addison woke up around midnight coughing and vomiting. Her cough sounded so painful and she would cry everytime. We had a rough night. We went to see Addison's pediatrician Dr. Guidroz this morning and she believes she is allergic to the bunny. She prescribed antibiotic ointment for her diaper rash and allegra twice a day for her allergies. She said we do not have to get rid of the bunny yet but the bunny has to live outside and we have to wash her hands very good after she plays with Chester. She said for me to apply for disablity Medicaid and for SSI income that Addison should have been receiving both from birth. She said after I apply she will write a letter stating Addison does have a disability that will affect her the rest of her life. It is so weird, I know Addison is sick but it is like I am still in denial. Just hearing I have a child with a disability from her doctor made it even more real. So that is my next step, applying for both benefits. I have been applying for regular Medicaid and that is why we keep getting denied. Disability Medicaid is a completely different application process. I asked more questions about Addison's sugar free diet too. Dr. Guidroz said as long as we are omitting the sugar juices and candy we can try to give her regular milk and other foods. Our next step is allergy testing. Maybe we are feeding her something she is allergic too and that is why she is still vomiting.
Please continue to pray for Addison, her doctors, and that we can figure out how to be approved for the SSI and Medicaid benefits. Thank you everyone for all of your support.
Monday afternoon she had an appointment with her ENT Dr. Scallon. Both of Addison's tubes in her ears are nonfunctioning beacuse they are clogged with ear wax. Dr. Scallon was able to remove some wax buildup from her right ear canal. She said her body produces so much wax the tubes are clogged and stuck and cannot fall out. She prescribed antibiotic ear drops for us to give Addison twice a day. And we also have to mix hydrogen peroxide and water and basically pour into both ears during her baths for 2 weeks to try to break up the wax. We will follow up in 1 month on May 8th. If the tubes still look bad Dr. Scallon will try to suction the wax out of the tubes and if that doesn't work she will surgically remove the clogged tubes and replace them with new ones. I want to be positive and think her tubes will unclog from the antibiotic drops but I am so used to everything going wrong it is hard not to expect the worst case senario.
Last night Addison woke up around midnight coughing and vomiting. Her cough sounded so painful and she would cry everytime. We had a rough night. We went to see Addison's pediatrician Dr. Guidroz this morning and she believes she is allergic to the bunny. She prescribed antibiotic ointment for her diaper rash and allegra twice a day for her allergies. She said we do not have to get rid of the bunny yet but the bunny has to live outside and we have to wash her hands very good after she plays with Chester. She said for me to apply for disablity Medicaid and for SSI income that Addison should have been receiving both from birth. She said after I apply she will write a letter stating Addison does have a disability that will affect her the rest of her life. It is so weird, I know Addison is sick but it is like I am still in denial. Just hearing I have a child with a disability from her doctor made it even more real. So that is my next step, applying for both benefits. I have been applying for regular Medicaid and that is why we keep getting denied. Disability Medicaid is a completely different application process. I asked more questions about Addison's sugar free diet too. Dr. Guidroz said as long as we are omitting the sugar juices and candy we can try to give her regular milk and other foods. Our next step is allergy testing. Maybe we are feeding her something she is allergic too and that is why she is still vomiting.
Please continue to pray for Addison, her doctors, and that we can figure out how to be approved for the SSI and Medicaid benefits. Thank you everyone for all of your support.
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