Day 2 of Hospital Stay

We checked into Our Lady of the Lake Children's hospital at 8 am yesterday. I had an Upper GI Swallow series test that showed liquid has no trouble passing through my stomach. The surgeon didn't want to just cut me so he contacted my pediatric GI. They decided to do another EGD first to see what is going on. My IV was messed up this morning so it had to be taken out. I went down to surgery at 12 pm. A new IV was put in my foot after I was put to sleep. The EGD showed the narrowing of my duodenum and it had a piece of food stuck in it. That is why the liquid has been passing through but not food. The first part of my intestines was "balloned up" because the food that could not get through was sitting in there causing irritation and ulcers. The GI, Dr. Alberty, took biopsies of the irritation. Now it was the surgeon's turn. Dr. Lopoo discovered the narrowing was not caused by scar tissue like we thought. He could not see where the original surgery when I was 1 day old was done. So this meant I have always had this. I was born with a closure and narrowing. Only the closure was noticed and fixed when I was 1 day old. What was fixed today was narrowing, not a full closure. Dr. Lopoo said it was in a very hard place to get to and my appendix was actually pushed up there too so he was able to remove it as well. Since it was in such a hard place he had to cut me bigger than the scar I already have. I can't be mad at my first surgeon because I was so small, 3 pounds, and just think how small my intestines were then. Must have been really hard to see. Mommy and daddy are extremely upset I have been suffering like this my whole life and no one was listening to them, thinking it was reflux. My surgery took 1 1/2 hours and mommy and daddy didn't get to see me until after 4 pm. I have a NG tube coming out of my nose suctioning my belly. I didn't like it when I woke up and pulled it out. It was put back in while I was awake and now I have to wear mittens that are strapped on my arms. I also have a suction tube coming out of my belly close to where my diaper starts. I haven't had my diaper changed in 12 hours so my fluids have been increased. My temperature has been 99.9 so my nice night time nurse is keeping an eye on me. I am recieving morphine for pain and antibiotics. I wish I could say I have been resting peacefully but I have the shakes which is a side effect from the anesthesia. I fall asleep for a few minutes and then I will jerk and shake. I have to let my stomach heal for a few days so I can't eat or drink. After a few days of just fluids from my IV, I can start a clear liquid diet, then a regular liquid diet, and then soft foods and so on. I will be in the hospital at least 1 more week. I will try to post each night on my progress. As always thank you for all your support and prayers.