Sorry I have not updated on Addison in a few days. I am so overwhelmed with everything. I am still trying to catch up from our hospital stay. There are just not enough hours in a day. Between taking care of Addison, working, and keeping up with the daily house chores, I am exhausted. You don't even realize how much you miss not being home for so many days. The stacks of mail to go through, bills to pay, the never ending laundry piled up, etc. Addison is still not sleeping through the night. She has never been a good sleeper and we were hoping the surgery was going to be like magic and fix her completely but that has not been the case. She usually wakes up and whines for something to drink but lately she has been waking up crying. I have to tell her we are at home and everything is okay. Then she wants me to rock her or she may not even go back to sleep and stay up for a few hours. I think she might be having nightmares about the hospital stay. She wakes up 3-4 times each night.
Addison followed up with her pediatric gastroenterologist today, Dr. Alberty. She almost weighs 27 pounds so that put a smile on my face. His main concern is her stomach's motility. He said because she had her stricture for so long that it may take severel weeks for it to work properly or it may never work normally. The part of her stomach that was right before the stricture, (the part that had food stuck in it) he said may always be enlarged. When I asked if we have to worry about this happening again, I hated his answer. He said "absolutely." I am trying not to focus on the thought of her going through this surgery for a 3rd time. Everyone keeps saying she is so little she won't remember. But how do they know? Of course she doesn't remember her first surgery at 1 day old but she keeps talking about her hospital stay. She is playing hosptial with her baby dolls and stuffed animals. Taking their temperatures and listening to their hearts and bellys. Today she yelled out her favorite nurse's name (we will call her L) and when I asked her who is L, she answered me L needs to come check my belly, she needs to listen to it. It is obvious she is thinking about it. On our way home from Dr. Alberty's office she was asking to eat and told me to call the nurse for chicken, french fries, and ketchup. Dr. Alberty said he wants to see her again in 1 month. We are hoping things will only get better once the swelling has gone down. He said Addison will be on the Prevacid at least 2 more months and if she is better after that we can start to ween her off of it. While we were waiting there was an 11 month old baby girl with a feeding tube and her mommy was preparing her bottle and then poured it into the feeding syrindge. Addison couldn't take her eyes off of the baby. She was asking questions and then started talking about the 2 tubes she had. And I was explaining to her the baby has a tube in her belly too and it was helping her to grow big like Addison.
Addison is so used to seeing doctors I have never had a problem with her but lately she wants me to carry her and she has to sit on my lap the whole time instead of playing with the toys. And when I tell her we are going to see the doctor she gets scared. I hope she starts to feel comfortable again. This month she had 3 therapy sessions, 5 doctor appointments and a 9 day hospital stay. I am glad January is over! So far we only have her orthopedic appointment scheduled for next week and her GI follow up on the 27th of February. Hopefully it stays like that so we can get a break. Traffic is so bad in Baton Rouge her appointments take hours. We left our house at 12:30 today for her 1:45 appointment. It was after 3 when we left the doctor's office and then had to deal with traffic to get home. It took 3 1/2 hours and we didn't even have to stop at a pharmacy. But then again I am so thankful we live near a big city and have access to all these specialists.
Yesterday she woke up and said she needed to go potty, which she did on the big girl potty! We asked her what she wanted for her reward and she wanted to go to Chucky Cheese. We took her and normally she runs around and we have to chase her, but she just wanted to people watch this time. She did ride a few rides but we had to carry her, she was scared to get down and walk. She ate 1/2 a piece of pizza and some grapes. We took her to Target afterwards to buy big girl panties so we can get this potty training started again. We first started after her 2nd birthday but November was such a hard month for us we slacked off for a while. Wish us luck!
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