Busy little bees

What a week it has been! Addison vomited 10 times in 12 days. She has been puke free since last Friday. She had her evaluation with a speech therapist who specializes in feeding yesterday afternoon. She said Addison has a few things going on. The first thing is she swallows her food almost completely whole. I had noticed last week in her vomit it was quite chunky. The therapist, Margaret, said she is only chewing like 2 times and then swallowing. That is why she spits food out. She spits the pieces that are to big for her to swallow whole. Margaret did a series of test on Addie. Addison also has sensory problems. For normal people when you taste something sour you will make a face. She was giving Addison pure lime juice and Addison never made the sour face. Margaret said she puts 2-3 pieces of food in her mouth at a time because she cannot tell she has food in her mouth unless it is full. She suggested we add lemon or lime juice to all of her food, even mashed potatoes. We have some homework to do. We have to set a timer for 5 minutes and reward Addison when she sits at the table the whole time. Each week we will add 1 minute to the timer until we are up to 12 minutes. I also have to go buy some tubing for Addison to practice chewing twice a day. Addison will have therapy every Tuesday for an hour. Margaret said some of the exercises she will do will most likely cause Addison to gag and vomit but we have to teach her how to chew correctly. Addison averages 1 doctor appointment a week so we will be even busier now. I guess we were spoiled with her other therapy sessions because the therapist would come to the house. Next week Addie will have therapy on Tuesday and see the allergist on Thursday. The following week she will have therapy and the ENT on Thursday. We have to follow up with her GI, Dr. Alberty after she sees the allergist so I am going to try to make it for the following week so we are not living at doctor's offices and don't go more than twice a week.We are getting things ready for this weekend. Saturday morning we have our walk for the March of Dimes. Saturday at 6:30 the benefit dance starts. I don't think people realize how much work goes into fundraising. The hardest part about the shirts is collecting money. I not only had to pay for the shirts, the raffle tickets and the dance tickets all up front but it is sad when people ignore your messages. I have had 3 people offer items for the raffle and we advertised for those items with their logos on the flyers that have not given me the items. Now we are forced to raffle the items we had for the silent auction. I don't understand how people can be so rude. The whole point was to help us with the medical expenses and now it is actually costing us money. More than anything my feelings are hurt and it has added more stress and disappointment. I will continue to pray for them and others that have let us down in our time of need. I pray they never feel the hurt and disappointment I am feeling and they never have a child with a medical disability. Okay, I said my two cents and I am moving on. We are still going to have a blast walking with the March of Dimes and shaking our booties for Addie. We will be frying fish starting at 6:30 and your meal is included with your ticket to the dance. Where can you go to eat and dance for $10? I will be very busy these next few days so I probably won't post again until Sunday night or Monday. Lets pray for a great weekend and a vomit free one too! I can't wait to see everyone and for all of you that have not met Addison, I can't wait to show off our precious miracle and strong fighter.