Oh Mondays!

Addison saw her pediatician this morning about her coughing and vomiting. She has a left ear infection and is wheezing on her right lung. We have already been seeing her ENT about her clogged tubes in her ears so the pediatrician thinks it is best to go ahead and have the tubes removed and replaced and not putting Addison through more than one procedure. Dr. Scallon, (ENT, I feel like I should make a cheat sheet with all her doctors names and what their specialties are for the blog readers) had previously said she could try to suction them out and then remove them and see how Addie did without them, but I agreed it is better to just get the surgery done and put her to sleep only once. Dr. Guidroz (pediatrician) said she does not want to diagnosis Addison with Asthma because they usually don't diagosis children when they are so young because most grow out of it. Since Addison was just in the hospital less than 2 months ago she suggested we start Addison on a preventive inhaled steroid to be used daily. She also prescribed an antibiotic, an oral steroid to just be used for 3 days, and an inhaler. For the inhaler, she prescribed a mask we will have to use to be sure Addison is inhaling all the medicine. I had to go to 2 pharmacies before I found one that had the size she needs. I just got a call our insurance does not cover the mask and it is $60 when using the Rite Aid discount card, which I hope is just the regular card and not something special that we do not have. The pharmacist asked do you still want me to fill it, well of course! What was I going to say no? I told Dr.Guidroz we were denied disability benefits and she said we have to start speaking up. I need to ask all of Addison's doctors for samples. She said it breaks her heart people with children with chronic diseases cannot get help. I seriously cannot thank all of you enough for your support. I am so blessed to have each of you in our lives. I did not hesitate to have Addison's prescription filled for $60. I honestly would have paid for it no matter what the cost was. If she needs it, I will do whatever it takes so she gets it. I am in tears now thinking the pharmacist asked me that because their are families that can't afford to get it filled. I am so grateful to my employers for allowing me to work from home to give Addison the attention she deserves. And of course to all of you. Because of you all donating I didn't have to hesitate, I can get the mask. We have to take each day as it comes to us. We never know how many appointments Addison will have in a week or prescriptions. I mean we have our routine visits planned but not the surprises we are given quite often.
As for what has happened over the last few months with Michelle, I cannot focus on her. Addison is my main priority and I do not have time to play games with dishonest people. She knows what she has done and I have no reason to make these things up. I have received an overwhelming amount of messages and calls about other things that were going on. I am so sorry to all of you that were donating to her and that she did this to you. Her name will never be mentioned in this blog again. I just wanted to spread awareness. Please if you need to get in touch with me my email address is southerngal05@cableone.net and if you see Addison's pictures on flyers or anything, remove them for me. We do not have any other fundraisers going on right now. I do have t shirts for sale but I am not advertising anywhere.
Right now I have to concentrate on getting Addison ready for the ear tubes surgery. I know this is a simple procedure but Addison is very smart. She has been through so much and she remembers everything. I have posted before about the nightmares and the trauma those IVs cause her. I am already dreading being in the preop room having to put a hospital gown on her and handing her over to the nurse. I know she will be terrified. Her appointment with the ENT is next week and I will post her surgery date when I know it.
I will post again later this week after she has therapy tomorrow and we have the allergist appointment Thursday.