Fingers crossed

Addison saw the allergist/immunologist, Dr. McCormick Thursday morning. He thinks she just has a lot going on. He prescribed a daily nasal spray and inhaled steroid to help with Addie's allergies. She is scheduled for skin testing on June 7th. He said she has a hypersensitive gag reflex and any kind of sinus drainage or cough will cause her to vomit. When she vomited Wednesday evening it was food she had eaten over 7 hours earlier. She ended up vomiting twice on Wednesday and Thursday and once on Friday. Dr. McCormick's office is located next to Dr. Alberty's office so I stopped by after her appointment and spoke with Dr. Alberty's nurse. She added Addison to his schedule for Friday morning. We left the allergist appointment and went straight to the therapist appointment. The therapist had a meeting Tuesday and we had to reschedule her original appointment. The therapist said Addie's tounge is all over the place and suggested we feed her baby food. I left there and went to walmart and bought some but Addison would not eat it. She said it was yucky. Tre took off work to come with us to see Dr. Alberty. We asked for a fatty meal test where Addison would eat and they would watch the food go down instead of the swallow test because we know liquid is going down. He said there is no need to do the test that if she is vomiting food she ate 7 hours earlier he knows she has gastroparesis. We had to start her on Reglan to help the food move down her stomach. Reglan can cause twitching so if we notice any side effects we have to immediately give her benedryl and stop the medication. If the Reglan does not work we will have to try a medication given to paralyzed patients that helps relax their muscles. Addison has also lost 2 pounds, she now weighs 28 pounds. Dr. Alberty said he is not worried about her weight but to make sure she takes a vitamin each day. He said we do not have to deprive her of fruits because of the sugar free diet but not to give her any candy, cake, you know the junk food. Also he said whole milk is too fatty for her stomach to tolerate. We should buy 2% instead. (of course because I had just bought an almost $7 gallon the day before!) Also foods like cheese, peanut butter, and meat takes longer for the stomach to digest. I am so glad I can buy fruit again because she loves it. I will call Dr. Alberty in a week to give him an update and follow up in his office in 4 weeks. Addison will take the Reglan 3 times a day and if she goes 1 week without vomiting we can decrease the dosage to twice a day and if she goes another week without vomiting we can decrease to once a day. After time if she is still not vomiting we can wean her off of the prevacid. It would be like a dream come true to go weeks without vomiting. It just seems to good to be true. Right now it has only been around 30 hours but any day with less laundry to wash is a good day for us. I feel so bad for her. She apologizes for being sick. She will say things like "I am sorry for puking on the new blanket." She had 3 doctor's appointments and a therapy appointment this week. Some of her doctors are located near the Children's Hospital and when she saw the parking garage she said "Here we go. We are almost there mommy." When we were at the allergist's office, the nurse wanted her to lay down on the scale and get her height and weight at the same time and Addie was really scared. She started clinging to me and crying. I had to explain she is sick a lot and it is tramatic for her. The nurse asked if I could lay her down really fast. I replied no! Did she not just hear what I said about it being tramatic? I told her we are at the doctors weekly and I know how tall she is from being measured last week. I think she got the point then and let Addison sit on the scale to be weighed.
Since we had such a bad week we decided to take Addison to a local church fair last night. I was so surprised with her. She wanted to ride the rides all by herself. They were "kiddie" rides but still. She has never rode any like that and she just sat down like she was a pro. We had her face painted, a butterfly on her cheek and later she wanted to do it again. She picked out LSU for her other cheek. Yes she did pick it out all by herself. Later we saw a girl with a LSU shirt on and Addie started chanting LSU, LSU Geaux Tigers. She is so her father's child! There was a band playing and Addie was dancing with some other little girls and the band played the hokey pokey for them. She was so cute dancing. It is times like that we completely forget she is sick. I truly treasure memories when the smile on her face is priceless. She gets to be a normal kid.  Today we are celebrating my 29th birthday. Yes,  29 for the third year in a row. ;) She has been singing to me all morning. Thank you everyone for all your prayers and support. I hope this medicine is the answer.