Such A Big Girl

Once again I appologize for not writing in so long. We started Addison on Reglan on Saturday May 5th. She was taking it 3 times a day. It is working! Addie has not vomited since Friday the 4th. Since she made it a full 7 days we decreased her dosage to only twice a day. If she makes it another week we will try decreasing to only once a day. We met with her feeding specialist and she would like to see Addie 2 times a week. We will have our normal visit on Tuesdays and if we already have a doctor appointment scheduled I will call and see if I can get Addie in the same day so we are not driving to Baton Rouge everyday. We have chewing exercises we do daily with her to teach her how to chew. She has 2 types of tubing she practices with. We saw Addie's ENT, Dr. Scallon last Thursday. Addie's tubes in her ears are still clogged and stuck. Her left ear infection is healed but she has fluid behind the right ear. Dr. Scallon said normally she can remove the tubes in her office but Addison's have dried up blood and are so "crusty" she did not feel comforable removing them. Addie's surgery is scheduled for next Monday morning. Since I was worried about Addie being scared having to wear a hospital gown, Dr. Scallon said to just leave her in her pajamas and if the nurses say something just to let them know she said it is okay. Dr. Scallon will remove the old tubes and irrigate to make sure there is no other old "junk" in her ears and then place new tubes in. This week will have therapy this afternoon and maybe again on Friday. Addie's preop appointment is scheduled for Friday afternoon with her pediatrician so we will see if we can get in with the therapist also. She is like a different person on the Reglan. I can just tell she feels so much better. The only problem is she cannot stay on the Reglan longer than 3 months. After talking to her therapist we are hoping after 3 months she will be chewing better and are fingers are crossed her stomach will have better motility by then.
We went to Gulf Shores Saturday and stayed the night to celebrate mothers day. It was very windy at the beach so we only stayed for 3 hours. We checked into the hotel and went to the pool. Addison just thinks she is such a big girl. I put arm floaties on her and she would tell me to leave her alone if I tried to hold her. She was jumping off the steps in the shallow end of the pool and "swimming" all by herself. She was giggling and so excited. When we walked into the hotel room for the first time she asked "Who is sick? Are we here to feel better?" She thought it was a hospital room. ;( She was a little hesitant at first but she eased up after a little while. We took her to a little amusement park and she loved riding all the kiddie rides. I just can't get over her independence. I want to protect her from everything and it is hard for me to let her do things by herself. I feel like she is so fragile but I have to learn to let go and let her be a kid. We have also started potty training again and she is getting better at it. Giving her stickers helps.