Even more testing

We saw Addison's pediatric GI, Dr. Alberty, today. He doesn't know why Addison is still vomiting so much so he ordered another test for this week. He also prescribed Flagyl. He aspirated her duodenum and the pathology report came back fine but he said she may have bacteria overgrowth on the outside from the food being stuck so long. She will take it 3 times a day for 10 days. I had to go to a compounding pharmacy to have the liquid Flagyl made for her. If we do not notice any changes she will start Reglan. If the test she has done this week doesn't show us anything she will have to have a motility test as well. If we still don't know what is going on we will have to start checking for allergies. He said normally he doesn't like his patients to be on Reglan longer than 2-3 months but patients with a cronic stricture like Addison will have to be on it longer. But she definetly still has something going on causing her to vomit. We will follow up with him again in 1 month. He said normally he is the one doing all the testing but in Addison's case we have to do the testing (medication trials) and tell him the results. I do feel confident he knows what he is doing and I trust him. He spent over 20 minutes explaining everything to us. I have been keeping track of what she vomits and when she does but now I have to also keep track of what she is eating. She was already supossed to have another swallow test next week ordered by the surgeon to check to see if the part of her duodenum that was enlarged is still enlarged and he said he will get her testing done this week. He said he is certain it will still be enlarged so this test will be different. It will time how long it takes the fluid to go down. Hopefully we will figure this out soon.
We will be interviewed live on Thursday at 10 at a radio station in Baton Rouge called 96.1 The River to share Addison's story about her most recent stay at Our Lady of the Lake Children's Hospital. It is for a radiothon to raise money since it is a community funded hospital. I am so nervous. I have been so emotional lately I am so scared I will start crying on air.
On a happier note, I paid off the surgery center she had her tonsils and adenoids removed and PET tubes placed in her ears and the one in Ocean Springs she had her first EGD done at. I also paid off the anesthieologist, radiologist, Dr. Alberty's bill from the EGD, and Dr. McNair. I owe the surgeon over $1,000 but I was able to make a $125 payment all this week. Thank you to everyone who ordered t shirts. I am hoping we have a huge success at the upcoming yard sale and dance to pay for her orthotics that our insurance does not cover.